Welcome to Rare Impacts
Please standby. The final version of Rare Impacts is in progress. Accompanying apps will be made available on Apple store and Android platforms.Rare Impacts is committed to provide education, facilitate advocacy and additional resources to the individuals and families impacted by Rare Diseases.
Ananya Asudani, Founder
Mission Statement
Rare Impact’s mission is to raise awareness, empower patients, and help advance research for rare diseases. We are committed to empowering individuals and families affected by rare diseases by providing education, support, and resources. Through collaboration with medical professionals, researchers, and communities, we strive to drive innovation, improve access to care, and foster a future where no one facing a rare disease feels alone.
About Rare Impacts
Rare Impacts is a passionate, youth-led nonprofit organization dedicated to raising awareness and driving change for rare diseases. Founded under guidance of experts in medicine, research, and advocacy, Rare Impacts aims to bridge the gap between communities, science, and resources. Through education, outreach, and collaboration, we aim to empower voices, support affected families and motivate advancements in rare disease research. Together, we are turning awareness into action and making a lasting impact—because every rare story deserves to be heard.
With approximately 1 in 10 people worldwide affected by a rare disease, which translates to about 400 million people globally, we strive to make an impact.
How Can Rare Impacts Help You?
Even in this day and age of rapid diagnostic technologies, it takes an average of 5-7 years for a patient to receive a correct diagnosis for a rare disease, with many patients seeing multiple specialists before receiving an accurate diagnosis. With an estimated global burden of about 400 million people, and as many as 25-30 million people in the US, living with a rare disease, there are 7,000+ recognized rare diseases. The majority of these diseases are genetic, and many are serious and life-threatening. 50% of rare diseases affect children, and 30% of children with a rare disease will die before the age of 5. These statistics underscore the urgent need for awareness, research, and funding to address the challenges faced by those living with rare diseases. Begin your search